FND in Poetry




This was written in 2018 on national poetry day: Have you heard the news about This thing called FND? Functional neurological disorder It was a mystery to me Until, about a year ago When they said "that's why you can't see" For several years before that I'd been told I had MS But this was changed to FND After a huge series of tests The neurologist said it was good news Though really quite complex Questions, I had many: So what is FND? How is it affecting me? What help might there be? Will I see again properly? Could I regain mobility? Sadly, answers were few It seemed no one really knew More research was due But there's a funding queue Go online and pursue Your own research on you So that was what I did Read all there was to find Papers, presentations Wasn't easy being blind But what else could I do Needed to understand my mind And that is where it is This thing called FND A disruption in the brain On that everyone agrees The wiring's gone wrong Though no one's sure why that would be Neuro signals get confused Some stop, others go insane My eyes see, but brain is blind Nerves don't feel, but brain feels pain Legs can move, but brain just won't Intellect is there, but brain is slain So what is there to do? A few therapy's exist But within a few months I'd been to every on the list And all of them agreed Nowt to do, I was dismissed So back I went online I found "FND hope" A small charity, growing To meet the massive scope There I found advice on How to live, more than cope Thousands of people Just like me Suffering each day Often invisibly Determined to improve How life will be Being part of the FND Online community Gives hope and understanding It's inspiring me To live and be The best I can be I must balance My energy I must try to Think positively I must keep remembering I'm still me I hope this little poem About living with FND Will raise more awareness About its complexity And maybe raise some funds Research needs money!! I'm selling my Little Guy calendar to raise money for @fndhopeuk and some cards which should arrive today. But why not give them a follow as well to keep up with all the amazing work the charity does.

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