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DORMIVEGLIA  

Living with Long Covid

Dormiveglia is a collection of 80 poems and 25 digital paintings about the reality of living with Long Covid.
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"I hope you enjoy exploring these poems and paintings. But more than that; I hope that it gives you an insight into what life is like for the thousands of people who are living a life changed so completely by Long Covid; and for the many millions who live with ME, FND, Fibromyalgia and other similar illnesses who have been ignored, misunderstood and often abandoned for years." - Emma
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I have recorded myself reading all the poems in Dormiveglia so that the book is completely accessible to everyone even if they can't access print media - as I can't.  If you are visually impaired or struggle with reading printed text then please contact me and I'll happily give you access to the audio description at no cost.  
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You can find more about Dormiveglia and read reviews on Goodreads https://tinyurl.com/Dormiveglia
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Visit the virtual art gallery of the artwork from the book https://www.demptyspace.com/e/shares/PrBqT5g0PN

 
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As someone with ME, whose body is energy deficient and often alerting to unreasonable pain, these words speak directly to me. So much so, that I could have written them myself but Emma has a special gift of making the complex, simple and the ugly, beautiful in ways I never could.
Thank you for sharing your gift of words and images with us Emma, and for teaching me to be okay with not being okay - I don’t feel alone anymore

Then on Twitter: "Huge thanks to Emma for a signed copy of her new book ‘Dormiveglia’.
In it, Emma shares her experience of #LongCovid and the struggles that brings through art and poems.
As someone with #MyalgicEncephalomyelitis, Emma gave me the words I didn’t have myself."


Review by Laura Neale, Director of YouBelong 

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"Have loved reading the poems of Emma Major in her new book Dormiveglia. 

Such thoughtful reflections on the reality of living with LongCovid &so very recognisable. 
Lots of questions,pondering, hope.
Do think this will resonate for many."

Review by Ruth Lampard, the chaplain to The ME Trust. 

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Today I read Domiveglia by @emmuk74. A book of poetry about #LongCOVID. It’s beautiful, with light and shadow, presence and purpose. It’s composed, complete and caring. It would be accessible to many with Long COVID. It’s a wonderful piece of work. Thank you Emma 💙

Review by Darren Brown, Chair of Long Covid Physio

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